Get Involved
STXBP1 UK Foundation runs on the time, energy and generosity of our community. Here's how to join in.
Volunteer
Tell us how you'd like to help
Help at family events, support our social media, or lend a professional skill — a few hours a month makes a real difference.
Fundraise
Start a fundraiser
Run, bake, skydive, or just set up a page — every fundraiser helps fund research and family support.
Raise Awareness
Find resources to share
Share our posts, tell your GP or school about STXBP1, and help more families find us sooner.
Join the Community
Connect with UK families
Come to a meet-up, join our private family group, and connect with others who understand.
Businesses & Partners
Corporate partnerships, workplace fundraising and in-kind support all help STXBP1 UK Foundation do more.
We're building out dedicated partnership options for businesses — from charity-of-the-year partnerships to matched giving and sponsorship. Get in touch and we'll talk through what might work for your organisation.(Placeholder copy — content pending from the Foundation.)