Family Stories

Every STXBP1 story is different. These are some of ours.

A 5 year old girl in a white top with pink flowers and grey shorts sitting on a see saw, smiling
Featured

Adelaide’s Story

Here’s Adelaide’s story

A 9 year old girl in a navy blue jumper
Featured

Erin’s Story

Erin’s parents tell us about their STXBP1 journey.

Brandon, a 30 year old male in an orange hat and light blue T-shirt standing infront of a cow at an enclosure

Brandon’s story

Say hello to Brandon

Photo of Daisie, a 6 year old girl with STXBP1 wearing a purple sparkly dress and a tiara

Daisie’s Story

Meet Daisie, from Northamptonshire.

Daisy, a 9 year old girl wearing a blue top and sitting on a large wooden log with a brown dog

Daisy’s Story

Here’s Daisy’s story:

A 10 year old boy sitting in a supported chair. He has dark brown hair and is wear a black and white polka dot bib. He is smiling

Elliot’s story

Meet Elliot, from South Wales

A 10 year old girl wearing a Scotland jumper and pink ribbons in her light brown hair, smiling.

Emma’s story

Meet Emma from Scotland